I use to complain about having no shoes.

There’s a saying that keeps me going, “I use to complain about having no shoes, until I saw a man with no feet.”  Barry Davis, shared this story with me. It makes me realize that the little problems I have whether I get laid or not, are really pretty small and petty. Well here’s Barry’s story of Chaos,

Riv,
 
I am by no means a blogger but I have followed your blog for a while now and wanted to contribute.
 
My daughter was born 11/11/08 and was the best thing that could have happened to me. It is amazing what happens to a person when they have a child. Little did I know that my joy would also bring the most chaotic moment in my life. The chaos started August of 2009. My mom who watches my daughter for us dropped her off and said she had just noticed that her eyes were moving on their own. We would later find out that the proper term is nystagmus and hers was rare because it was a circular motion. My wife fretted and wondered what to do. She kept asking me and I told her not to worry it will pass, that it just had to do with her growing.
 
Well , what wife listens to her husband. She took her to the pediatrician and he was at a loss as to what was causing it. So now it was off to the opthamologist. Everything checked out ok with him and he stated that it was purely neurological. The pediatrician scheduled a MRI for us and an appt with the neurologist. Monday we had the MRI and Thursday was neurologist. Well Wednesday rolled around and the chaos breaks. My wife received a call from the pediatrician and missed the call. She could not bring it to call them back on her own, so that duty fell to me. I called the pediatrician back on his cell phone, on his day off as well, and he said “ There is no easy way to say this but I just received the MRI report back on your daughter. The nystagmus is being caused by an arachnoid cyst that is in her brain. It is 4.2 cm x 2.8 cm x 3.1 cm. I am pretty sure that it is a cyst but you will have to see a specialist to find out what it is for sure.” That is when my world crumbled. It is not easy too look at your wife and tell her that the child she carried for 9 months has a giant cyst in her brain that is making her eyes move in circles. She was crushed while I had to stay strong to keep us from losing our minds.
 
The chaos grew even more when we went to the neurologist who looked at the report and informed us that it was not an arachnoid cyst but that it was only noted that it had cyst like features. But that it could be anything a cancerous tumor or just a cyst. My wife’s worst fear is cancer so she was a wreck. Not knowing what was going on until we saw the neurosurgeon in a couple of weeks we began the hard task of preparing for a life without our 8 month old daughter. I forgot to mention that she was only 8 months old. Things finally got better when we saw the neurosurgeon and he gave us good news just an arachnoid cyst. I must say that man is the most amazing person in the world. Double board certified in adult and pediatric neurosurgery (with a focus on kids) and he averages 360 cases a year where other surgeons average 100.
 
He got her in a week later and had a successful surgery. Four days after it we were able to take her home and she is living a normal life so far. We just have to have a MRI once a year for the next few years. Chaos is preparing for your 8 month old child to die before you. Through it all the lesson that I learned was to appreciate every little thing that you have and can experience. Do not take anything for granted because it can all be gone in an instant. I have attached some pics if you would like to use them and you have my permission to use them. One is a picture of the cyst from the MRI, one is before the surgery, one is after the surgery, and one is her now.
 
Thanks for your writing!
 
Sincerely,
 
Barry Davis

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

  

  Just want to thank Barry, for sharing I know I take away something from this story. I hope you do to.

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8 Responses to “I use to complain about having no shoes.”

  1. Thank you for sharing this story.

  2. pitrelli Says:

    Really dont know what to say, I had a massive lump in my throat reading through it dreading reading the outcome. Thankful that it was a happy ending and what a little cracker Barrys daughter is.

    Many thanks for sharing this Barry to even write about this experience must take great bravery.

    All the best wishes for you and your family for the future

    • Barry Davis Says:

      It does a little though not as much as she showed. It did bring back a lot of memories. Like when she reached up to touch my face if I would ever feel that again. All in all life is precious and every moment is a memory waiting to happen. I was able to get my strength by talking about her strength to others. Thanks for the kind words!

  3. Barry Davis Says:

    For some reason it is my favorite thing to share. Probably because through that rough time she was as happy as could be. With all that was going on she could still smile everyday. It also helped to remind me of one of my favorite quotes “Even in the darkest of times one kind find hope if they simply remember to turn on the light.” And i couldn’t think of a better person to share it with than Riv. His in your face tell it how it is whether good or not writing style just hits home.

  4. Thank you for sharing your story!

  5. Thanks for sharing Barry.

    You are a very lucky man, not just because of the help and outcome, but for having a beautiful daughter.

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